Saturday, October 31, 2009
Friday, October 30, 2009
Wednesday, October 28, 2009
Tuesday, October 27, 2009
Monday, October 26, 2009
Brook almost 4- All I want for Christmas
Gage age 7- Listening
Teaching a deaf child- Brook age 4
deaf children swimming-no processors
Friday, October 23, 2009
Gage however doesn't have great teeth and we've been aware now for years that he'll likely need a jaw distraction which is a pleasant way of saying they need to break his lower jaw and lengthen the bone. We will begin our lengthy journey to corrective oral surgery(ies) from braces, jaw distraction to dental implants. Our dentist used to work with children from the school for the deaf and he said he'd actually practiced some of his signing prepping for our arrival and soon found out that it wouldn't be necessary. (This is only the second time this new dentist has seen my kids) So hopefully there will be no rush to get Gage into the O.R. again, I'd like to have a year w/out surgery and since it's likely he'll be home-bound for a few weeks (months) during the jaw distraction ordeal unless we can pull it off in the summer (and complete ruin his whole summer break, ugh!) I'd like for him to be able to have a full year's break from hospitals. To be continued....
oh, and would you believe that both kids couldn't wait to get to school. They had the option of staying at home due to our appt. time and both had so much they DIDN'T want to miss at school they just passed on the idea and said "how fast can we get to school?" They made it minutes for the cut off time between tardy and absence even though they had excuses.
Thursday, October 22, 2009
Tuesday, October 20, 2009
He exclaimed what a great day he'd had. He couldn't wait to go back tomorrow and the day after and the day after, he just did so much work, and he was so excited.......okay, that's definitely unusual.
We get home and he goes straight for the computer, not too unusual but generally he prefers to play outside first. He sat...at
I figured out what was different about the after school conversation on the ride home. It lasted the whole 10 minutes home but after I had time to take it all in I realized...it was all one story. It was 10 minutes about what happened at P.E. Usually it's like 20, 30 sec. stories but this was all related, all one story, very detailed. Hmmmmmmm, to be continued!
Not sure if it's about to rain, or if the skies are just clearing.
Monday, October 19, 2009
Saturday, October 17, 2009
The Black Out-Freak Out Dec. '08-When Brook woke up to blackness, no hearing, no vision!
The Carwash- Nov '08-When I learned what it must be like to be a deaf child going thru a car wash
The Sparrow-Nov '08- A fictional short story w/symbolism...when someone finally listens to what you've been saying
Tasting the Clouds-Nov'08-written a few days after The Sparrow w/related content
The 1 1/2 hr conversation-July '09 tells of fire safety w/deaf children
The Thrift Store-Aug '09tells of the non stop talking of my deaf child and the listening abilities of my other deaf child...also about good thrift store bargains for therapy
Advocating for Themselves- Sept '09- means just what the title says
Three Wishes-Oct '09 recent story of how a deaf child views himself
Friday, October 16, 2009
Wednesday, October 14, 2009
Now I find out that our BCBS insurance that my husband's work provides us with, doesn't cover ADHD, that's just great! Again, we'll make it, we'll struggle, but we'll survive.
But I have to say with ALL this child has had done medically in his past, we've been lucky. We now get his ci audiology taken care of courtesy of our insurance and they've helped us out tremendously with all his surgeries, therapies, MRIs, CTs, medications, etc. So I can't complain too much.
Today we got report cards...Gage's lowest grade was a 75 and he had mostly As and Bs, and Brook did well (surprisingly) also and had all S's(satisfactory) other than one N(eeds to improve). Now without the sarcasm, that's just great! woohoo!
Sunday, October 11, 2009
Friday, October 9, 2009
...and not one of them work! Just when you think you've heard it all, we find out that the thing removed from our child's face was where an ear actually tried to form as he was growing in my belly! The doc did a fabulous job (as usual) and removed this "ear" off of his jaw line and he had to dig down about two inches to get it all, it had grown inside his cheek. Gage was a trooper and said "That didn't take long, I feel like I've visited Mandy (his audiologist) and left with a band aid." The doctor removed the hump in front of Gage's ear also which was extra skin left over from when they tied the pre-auricular tags off with strings at birth (those tags simply fell off after a couple of weeks). Oh, and I know he's too big for the toddler toys but no one cared if he rode in that, it occupied him during the 30 min wait pre-surgery.
the tags removed are just below the print
I told him this morning that when people see others with scars, it lets them know they have a history, a past, an interesting story to tell about how they earned those scars...scars are cool. Today when Brook got off the bus, I heard him tell B, "Scars are cool, it means they've had something interesting happen."
Speaking of Brook, apparently her batteries ran down right before school got out, she couldn't get her processors to turn back on so they sent an older kid to ride with her and help her out since she rode home in silence. We fixed them when she got home, I think she changed battery cages, and not the batteries. They work now. And I know, I know, I didn't want to send her on the bus but had too, I wasn't sure I'd get home in time to do car pick up.
Thursday, October 8, 2009
My husband and I had been afraid to even begin all this with Gage because we "knew" we'd be picked apart as parents, open ourselves up for major criticism, finding our faults and having them displayed right in front of us, and then actually paying (a lot!!) to have all this information. Did we really want to hear this? But we decided this was something we needed help on (ADHD) and we felt it was important enough to invest our money in our own child's health and happiness and do what was best for him, since we were sure he would certainly benefit from the visit(s).
After Gage had been back there with the doctor for almost an hour, the doctor came in to get me, so we could speak in private. This always concerns me for good reason and if you know our history and our complete story, you'll know why! So he takes me back into this area, telling me to keep my voice down, he didn't want Gage to accidentally hear me and have an excuse to come out of the room (where he was left to do some "work" to see if he could complete it unsupervised). With a confused and concerned look he says, "Gage told me something and I have to ask...did he have to call the cops before?" If you know this story, you're probably already smiling, if not, click here. He tells me a very interesting story (I won't go into details 'cause it's not even important) but it ended with Gage being a hero for the day when he saved us all. Anyway, I told him the real story and he got a good chuckle out of it.
Then he tells me this...He says that he was talking to Gage and he asked him if he were magic and could grant Gage three wishes, what would he wish for. For some reason my usual plump face full of dimples fell flat right at that moment. I began watching the doctor because I could no longer hear him. I knew this was it. This is what it all came down to. It appeared the doctor was trying to get Gage to talk about his deafness or his cochlear implants or his syndrome, some of the things that make him unique. I could feel my neck get warm as my blood pressure rose, afraid I was about to hear the news a mother never wanted to hear. My hands shook as my glances shifted around the room trying to occupy my brain with anything other than what my head was telling me. Was he gonna tell me that Gage didn't like being the only deaf kid in his class? Was he gonna say something even worse that would break my heart in two, like maybe he wanted to behave better so his teachers and his mama and daddy didn't get so upset with him? Was he gonna say that he felt Gage might be mistreated by his peers or feel out-of-place somewhere or even worse, feel out-of-place everywhere?
"Just say it!" I wanted to scream as he closed his "forewarning", so I thought...
My mind entered back into the conversation as I could see he was trying to politely tell me he assumed Gage would mention his deafness in his three wish request....
...but instead he tells me, "His three wishes were...he wants a dune buggy, he wants a new four wheeler, and he wants to be a better swimmer." The doctor gives Gage another opportunity to express any concerns he has about being different and tells Gage "suppose you already had all three of those, what would you wish for then?" and again got very normal-age appropriate answers! He said after a while of "other stuff" he asked Gage about his processors, what they were for, and if they hurt? really anything that might spark any concern in that area, and he told me that he (the doc) felt like Gage was like...yea, I have implants, I don't hear without them, I can hear with them, and that's that. It's just part of who he is, not a huge deal.
I felt my chest rise and fall again as I once again started to breathe, not realizing I'd been holding my breath this whole time. I had no idea he was going to ask that question, and I had no idea how Gage would respond to such. So I'm very proud of my little guy! And happy for him, that he's very secure, very open with us. We've never tried to hide much of anything from him and we've tried to teach him to advocate for himself, but unsure if we were doing the right thing. It's nice to have a doctor look at me, and assure me he seems very happy and mentally healthy, when I was afraid he might tell me differently.
All that work over the last few years, of not just preparing my child for the world but preparing the world for my child, has paid off. Patiently changing those hard stares, pointed fingers, and other non verbal and verbal forms of ignorance...to raised eyebrows, smiles and conversations and I now have one of my three wishes....to have healthy and happy children!
Monday, October 5, 2009
Sunday, October 4, 2009