56.5% say that it's extremely important for all staff (including reception!) to be fairly knowledgeable about hearing loss, hearing aids, BAHAs and CIs at the ENT's office and/or audiologist's office. One person noted that these are the people representing that organization being the first person of contact and they should be knowledgeable also about how to communicate w/those with hearing loss.
34.8% say it's only somewhat important for the full staff (including front desk) to be knowledgeable and
8.7% say it's not that important, they just explain what's not understood
52.2% say they want to see more parent group meetings with professionals attending (this one surprised me a little) and
26.1% say more meeting without professionals, parents only
26.1% also say they do not have time for group meetings ... some noted that people rarely show up for these meetings and several asked for some meeting w/pros and some with parents only...sort of an even mix
65.2% say they are very open discussing issues such as behavior, discipline, at-home therapy and scheduling conflict with these professionals.
26.1% say somewhat comfortable
8.7% want to keep this discussion between parents only... someone noted that parents are just better sounding boards for these issues
56.5% are driving (even flying) more than 30 minutes but say the service is well worth it
26.1% are within a 30 min drive and
4.3% have no choice, the drive the long distances because they have to
13% say the travel is highly inconvenient and causes added stresses and as one commenter noted, It's not very convenient but the service is worth it
65.2% agree that their clinics try to reduce these stresses making things as convenient as possible
26.1% say they don't think their professionals have a clue what it's like and
8.7% are undecided...the comments here again suggest weekend therapy appts. and also noted was that they don't feel some professionals know what it's like to ride in a car for an hour or more with a newly diagnosed child who's hungry, fussy, sleepy, and frazzled by the time they get to the appointment
43.5% claim to have stresses at times over all the appointments but they did not have suggestions for their professionals while
30.4% did, here's what they say: some want evening or weekend appointments and some just want their clinicians to stop rescheduling unless it's EXTREMELY necessary. People have to take off from work and some even have to change flight plans when their professionals reschedule! Some are not getting automated reminders for appts. Some people have to call around to many offices before they actually locate the professional they are looking for since they work at different offices...can we get a central number please! (I feel for ya on that one, luckily mine works in one location) and someone else has to lug around audiology records or call around to have them sent from here to there when their idea to have a central "bank" for these records so they are all located in one area and accessible to the other professionals that work with the child. And still, by far, the biggest request is encouragement!!! One person noted their doc gave them a "he's perfect" at a check up and that made her day! Another suggests that these professionals offer encouragement even when the child isn't progressing as fast as they feel they should with each "assignment" (referring to the therapy) and she also notes "It is not motivating to leave a therapy session feeling like a failure." !!! nice work guys!
26.1% don't have additional stresses due to appointments.
86.9% connect with families weekly (at least) though most of these resources were not provided by the professionals
13% occasionally connect via forums, email or blogs while
0% say they do not have the time or interest
82.6% want their professionals to give them resources like local blog addresses or forums or email addresses to connect with other local parents !!!
13% said they did not want this info from their professionals and
4.3% were undecided
if the results change by much I'll re post the results over the weekend........thank you for participating.